It’s been a while since I’ve last written a parenting blog post. I don’t know why I always feel unfit to give advice or share my views on parenting. Oh, yes, I actually do know why. Because as a mother of a special needs child, I often feel that I can’t relate to the parenting styles that most people around me have adopted. Or, perhaps, it’s the other way around? Aha… that’s it! It’s mostly people with “normal” kids who can’t relate to my views and experience raising a different-slash-special-slash-unique-slash-amazing child.
Lately, instead of sharing what it’s like to have such a child, I sort of drifted away from my goals for this blog. I haven’t been able to write, and I’d like to say I’m sorry to my readers who feel inspired by my “courage” to share parts of my life. It’s been quite hectic and tough in my household, and I honestly started questioning this whole “raise awareness” approach that I was so enthusiastic about during my early months of blogging. Was I really helping others understand my son better by writing about how hard our life is or was I just arousing pitty?
People still give me this puzzled look saying ‘How do you know he’s autistic, he “looks” fine?’ To me, that’s just saying “we really don’t believe this ridiculous diagnosis, but hey if that’s your way of justifying his misbehavior.” It hurts when people ask if there’s a “cure” for autism or whether he’s getting any better with all those endless costly therapy sessions, and all I want to say is “if you’re nagging about how long it’s taking, try living a day in my home and experiencing this unpredictability and uncertainty yourself…oh yeah, and here is our therapist’s bill just in case you feel so bad for us that you’re willing to pay it.”
I have no spite for parents who don’t have special needs children, in fact I’m always willing to answer any question related to autism and my son, based on what I’ve read and experienced myself. Why would I blame someone who’s never had to deal with all the things I deal with if they wonder “what it’s like” and genuinely wants to help? However, I would blame someone who deems her/himself a parenting expert or an educational specialist if they “can’t relate” to my confusion or struggle as a special needs mother. You simply can’t justify this person’s “lack of knowledge” or “failure to empathesize”. You simply can’t allow this deliberate denial nor tolerate this disregard to your feelings and your child’s.
In this day and age, more and more children are being diagnosed with all sorts of learning difficulties and mental disorders. We can no longer overlook those children’s needs or write off their developmental delays as “phases they’ll get over oneday”. Maybe they will, maybe they won’t. Until they do (and if they do) we must remember that special kids are no different, they thrive on love and understanding, they feed on support and affection. They need to be merged and mainstreamed, not left behind and isloted as if they were malfunctioning defected creatures. Yes, their lives are hard, but they won’t get any easier if we judge their parents or treat them differently, out of pure ignorance. So to those who can’t relate to my special kind of motherhood, I say: “Get a freaking book already.”
Stay awesome, special moms ❤