What they don’t tell you about Autism

They say autism is a spectrum of symptoms varying in severity and functionality. They don’t tell you about the spectrum of disappointments, exasperations, fears and worries that will always be a part of your parenting journey.

They say autism is a communication disorder. They don’t tell you about the disorder and isolation that will turn your life upside down. 

They say many autistic children like things in a certain order or made in a certain way. They don’t tell you how exhausting it is for you as a parent not to be able to do things spontaneously without facing a major tantrum. 

They say temper tantrums are very normal for individuals on the spectrum. They don’t tell you about the nights you’ll spend crying, wondering if there will ever be a stress-free day in your parenting life. 

  
They say children on the spectrum have certain fixations and rigid interests. They don’t tell you about the time, money, and efforts you’ll spend trying to fix what is seemingly unfixable.

They say ASD children need love and understanding. They don’t tell you you’ll need that same amount of love and understanding yourself to carry on. 

They say ASD children have trouble making and keeping friends. They don’t tell you you’ll start losing your own friends too. 

They say some autistic children can have attention and hyperactivity issues. They don’t tell you you’ll be craving 5 minutes – just 5 minutes – of peace and quiet a day.

Autistic children are special indeed, but autism is a very lonely and foreign place for a parent. Though there may be hope, that hope waxes and wanes very unexpectedly. As you seek to make every day as systematic and predictable as possible for your ASD child, the outcome is almost always unpredictable. 

But as parents, we never give up. We never stop believing things will get better one day. Yes, we accept destiny  with a full heart but we all (secretly) wish we could have just one “normal” day for a change.

#honestyissuchalonelyword

~Zeina

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Author: Zeina

I'm a Lebanese translation and editing professional. I mother two adorable children, a 7-year-old hero on the spectrum and a 2-year-old princess just launched on her terrible two's! Juggling parenthood and a home-based freelance career is no easy task, especially for a (hopefully recovering) perfectionist. This is where all the writing and poetry come to my aid, as a source of inspiration, hope and emotional well-being. Poetry is the spark of creativity that ignites my rather mundane life. Spirituality is what keeps me focused on my purpose.

4 thoughts on “What they don’t tell you about Autism”

  1. Thank you for sharing this. It’s beautiful written and I can tell it’s from the heart. I hope you do have one ‘normal’ day at some stage.

    It seems like there is generally a lot more awareness of autism these days but there is still not a lot of understanding of it or the impact it can have on families and parents. I hope posts like this may help some people understand a little more.

    I feel like it’s helped me understand and empathise a little more at least.

    Liked by 1 person

  2. Thank you CJ first for taking the time to read this and second for following my blog! I’m making it a point to spread more autism awareness through writing about our journey as a family with an autistic child. There’s still a lot to learn, of course. I’m glad you were able to connect to this post.
    I love your photography, been following your blog for a while. Keep them coming!

    Like

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